One World. One Standard.®

Epilepsy is a global problem that deserves a global solution.

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The Challenge

The vast majority of people living with epilepsy and associated psychiatric disorders in the developed world have their disorders controlled, typically with medication. But patients in the rest of the world go without these diagnostic tools, effective treatments and basic medications.

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The Process

The ROW Foundation is pursuing change. The ROW Foundation is a shareholder of OWP Pharmaceuticals, a for-profit company that produces neurology and psychiatry medications. Profits from OWP fund the charitable projects of ROW. Working together, the two organizations are an expression of sustainable philanthropy that can change the world.

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The Solution

The ROW Foundation provides treatment resources, including proven medications, to people with epilepsy and associated psychiatric disorders. ROW also helps neurologists and psychiatrists in the developed world train practitioners in the developing world to more effectively treat epilepsy and associated psychiatric disorders.

We share the World Health Organization's belief that, “the highest attainable standard of health as a fundamental right of every human being.” In that spirit, we're working toward a world in which the same standard of care for epilepsy and associated psychiatric disorders is available to all people, at all times, in all the world.

Vision

The ROW Foundation exists to improve the lives of people living with epilepsy and associated psychiatric disorders in under-resourced areas of the world. We envision a future when the best treatments will be available to all people, at all times, in all the world.

Mission

In fulfilling our vision, the ROW Foundation works to improve the quality of training, diagnosis and treatment available to people with epilepsy and associated psychiatric disorders in under-resourced areas of the world. We partner with other organizations to maximize impact in under-served areas, both domestically and internationally.

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One World. One Standard.®

The map shows our completed, ongoing and future projects. Click on highlighted countries to see what we’re doing around the world.

Completed Projects
Ongoing Projects
Future Projects
Multiple Projects

Diagnosis and Treatment Grants (Multiple)

In 2015 a diagnosis grant in the form of a 32-channel video EEG workstation was given to the Armenia League Against Epilepsy, to be placed at Arabkir Pediatric Hospital in the capital city of Yerevan. Beginning in October 2016, an ongoing treatment grant has been supplying the hospital with Roweepra® (levetiracetam USP) anti-seizure medication. In 2019, the grant was expanded to add an ongoing supply of Subvenite® (lamotrigine USP) anti-seizure medication.

Treatment Grant (Ongoing)

In 2019, a treatment grant was provided to Armenia Artsakh Fund. This grant provides Subvenite® (lamotrigine USP) to the Karabagh Ministry of Health. This is an ongoing commitment of medication, to be resupplied annually.

Treatment Grant (Ongoing)

In 2018, a treatment grant of Roweepra® (levetiracetam USP) was provided to Solidarity Bridge/Puente Solidaridad for use in the nation’s first comprehensive epilepsy center at Belga Hospital in Cochabamba, Bolivia. This is an ongoing commitment of medication, to be resupplied as needed.

Diagnosis Grant (Future)

The ROW Foundation is hoping to grant mobile EEG equipment to assist with the diagnosis and monitoring of epilepsy patients in outlying, under-resourced areas of Cameroon. When the grant is fully implemented, EEG scans will be able to be transmitted via the internet and read by volunteer neurologists in the United States, who can then provide diagnoses to health care providers in Cameroon.

Training Grant (Future)

The ROW Foundation hopes to partially fund a new neuro-diagnostic training program at a university in northern Cameroon.

Training Grant (Completed)

In 2017, a training grant was provided to the Global Organization of Health Education (GOHE) for the purchase of technical materials to be used in training EEG technicians at Mekelle University in Ethiopia.

Diagnosis Grant (Future)

The ROW Foundation is hoping to grant a 32-channel video EEG workstation to an epilepsy society headquartered in Accra, Ghana for use in diagnosing and monitoring epilepsy among under-resourced populations in the greater Accra area. The epilepsy society will make the equipment available through various clinics and coordinate its use.

Diagnosis Grant (Future)

The ROW Foundation is hoping to grant a 64-channel video EEG workstation to a neurology center in Guatemala City, Guatemala to assist with diagnosing and monitoring patients with epilepsy due to traumatic brain injury, and patients with forms of epilepsy resistant to typical forms of treatment.

Treatment Grant (Ongoing)

In 2017, a treatment grant was provided to Children’s Hope, a US-based nonprofit operating a medical/dental clinic in Jacmel. This grant provides Roweepra® (levetiracetam USP) for epilepsy patients being treated through the clinic. This is an ongoing commitment of medication, to be resupplied as needed.

Treatment Grant (Ongoing)

In 2018 a treatment grant of Roweepra® (levetiracetam USP) anti-seizure medication was provided to Clinique d’Epilepsie de Port-au-Prince (CLIDEP) to augment medications available locally for treating patients with epilepsy. This is an ongoing commitment of medication.

Treatment Grant (Ongoing)

In 2018, a treatment grant was provided to Concerned Haitian Americans of Illinois (CHAI), a US-based nonprofit operating a medical clinic in a rural area near Cap-Haitien. This grant provides Roweepra® (levetiracetam USP) for epilepsy patients being treated through the clinic and students from CHAI’s two schools. This is an ongoing commitment of medication, to be resupplied as needed.

Diagnosis Grant (Completed)

In 2018, the ROW Foundation made a grant to Emmanuel Hospital Association for the purchase of two 32-channel mobile EEG units. The grant was fully funded by a generous donor family with personal ties to both epilepsy and India. The equipment placed at Champa Hospital in Chhattisgarh state and Duncan Hospital in Bihar state will serve poor and marginalized patients in these regions in central and northern India. (Duncan Hospital also serves patients from neighboring Nepal.)

Diagnosis Grant (Completed)

In 2018, the ROW Foundation granted funds to Santokba Durlabhji Memorial Hospital for the purchase of a portable 32-channel video EEG workstation in Jaipur, India. This EEG will be used in the pediatric ICU for diagnosis and monitoring of epilepsy for children in the greater Jaipur area.

Treatment Grant (Ongoing)

In 2018, the ROW Foundation provided a treatment grant of Roweepra® (levetiracetam USP) anti-seizure medication to the Kenya Association for the Welfare of People with Epilepsy. This is an ongoing commitment of medication.

Diagnosis Grant (Completed)

In 2016, mobile EEG equipment was provided to AIC Kijabe Hospital, a rural hospital in the Great Rift Valley of Kenya that had no EEG equipment, and no resident neurologists to read EEG studies. Through a grant to the Christian Medical and Dental Associations (CMDA), the equipment was placed, hospital staff were trained, and a mechanism for transmitting the EEG studies to volunteer neurologists in the United States was established. This allows volunteer neurologists to make diagnoses based on the EEG study data and to communicate with the health care providers at the hospital in Kenya who then provide treatment. Leveraged partnerships also resulted in a duplicate project at Tenwek Hospital.

Treatment Grant (Ongoing)

In 2019, a treatment grant was made to Loma Linda University Health for their epilepsy programs in Malawi. This grant provides Roweepra® (levetiracetam USP) for epilepsy patients treated at hospitals in Blantyre and Makwasa. This is an ongoing commitment of medication.

Diagnosis Grant (Future)

The ROW Foundation hopes to fund an epilepsy support organization to expand their ongoing telehealth program in western Nepal.

Diagnosis Grant (Future)

The ROW Foundation is hoping to grant a 32-channel video EEG workstation to a hospital in Abakaliki, Nigeria for use in diagnosing and monitoring epilepsy among under-resourced populations in the greater Abakaliki area.

Training Grant (Completed)

In 2018, a grant was provided to the Global Organization for Health Education (GOHE) for trainers attending the first annual African Neurophysiology Annual Conference in Lagos. This event offers training for neurodiagnostic professionals from across Africa.

Training Grant(Completed)

In 2019, a training grant was made to the Yale University Global Mental Health Program. This funding supports The HAPPINESS Project, training primary care providers in Imo State to screen for and treat patients with mental disorders, substance abuse disorders and epilepsy. This is ROW Foundation’s first grant with a focus on psychiatry.

Treatment Grant (Ongoing)

In 2019, a treatment grant was provided to the West Atlantic Brain and Stroke Foundation. This grant provides RoweepraXR® (levetiracetam, extended-release tablets) for epilepsy patients treated through the foundation’s epilepsy clinics held at Regions Stroke and Neuroscience Hospital in Owerri. This is an ongoing commitment of medication, to be resupplied as needed.

Diagnosis Grant (Complete)

In 2018, a diagnosis grant in the form of a 32-channel video EEG workstation was given to the Georgian League Against Epilepsy, to be placed at the Institute for Neurology and Neuropsychology in Tbilisi. The new EEG workstation will allow the institute to diagnose under-resourced individuals with hard-to-treat epilepsies.

Treatment Grant (Ongoing)

In 2017, a treatment grant was provided to CURE Children’s Hospital of Uganda, located in Mbale. This grant provides Roweepra (levetiracetam USP) to augment the locally available medications available for treating patients with epilepsy. This is an ongoing commitment of medication.

Treatment Grant (Ongoing)

In 2018, the ROW Foundation started providing anti-seizure medication to Loreto Clinic in the city of Makeni. Roweepra® (levetiracetam USP) anti-seizure medication augments locally available medication for treating patients with epilepsy. This medication grant is only possible through ROW’s partnership with the Healey International Relief Foundation.

Treatment Grant (Ongoing)

In 2018, the ROW Foundation provided Roweepra® (levetiracetam USP) for Medical Assistance Sierra Leone (MASL), a UK-based organization. In 2010, MASL and local partners established the first clinical epilepsy service in Sierra Leone. The supply is dispensed by Epilepsy Association Sierra Leone and will be replenished as needed.

Shipment of this grant was made possible by the Healey International Relief Foundation. 

Diagnosis Grant (Future)

The ROW Foundation is hoping to grant a 32-channel video EEG workstation to an epilepsy society in Mbabane, Swaziland for use in diagnosing and monitoring epilepsy patients in outlying, under-resourced areas.

Treatment Grant (Ongoing)

In 2019, the ROW Foundation granted 100 cases of RoweepraXR® (levetiracetam, extended-release tablets) for use at hospitals throughout northwest Syria. ROW became aware of this need through the Syrian American Medical Society (SAMS). Shipment of this grant was made possible by ROW partner Direct Relief.

Training Grant (Ongoing)

In 2019, a treatment grant was made to Provision Charitable Foundation. This grant of Subvenite® (lamotrigine USP) will supplement the locally-available supply of lamotrigine and benefit pregnant women treated by the Mahenge Epilepsy Clinic. This is an ongoing commitment of medication.

Treatment Grants (Completed)

In 2017, a grant was provided to Guiding Light Orphans (GLO) in Uganda to assist with the purchase of locally-available anti-seizure medications, and to support operation of their mobile epilepsy clinics. In 2019, GLO was named the recipient of the first Amanda Award, an annual award presented by ROW to an organization that achieves meaningful results in addressing untreated epilepsy. GLO received a $2500 grant to be used for the purchase of anti-epileptic drugs for their monthly epilepsy clinics.

Treatment Grant (Ongoing)

In 2017, a treatment grant was provided to CURE Children’s Hospital of Uganda, located in Mbale. This grant provides Roweepra (levetiracetam USP) to augment the locally available medications available for treating patients with epilepsy. This is an ongoing commitment of medication, to be resupplied every six months.

Treatment Grant (Completed)

In 2016, a grant was provided to Epilepsy Health Management (EHM) to assist with modifications to a local epilepsy clinic in northern Illinois that will allow epilepsy patients with mobility issues – often as a result of traumatic brain injury – access services more easily.

Treatment Grant (Ongoing)

Since 2017, treatment grants have been made to two Epilepsy Foundation chapters in the United States: one to the Epilepsy Foundation of North Carolina, and the other to the Epilepsy Foundation of North/Central Illinois. The grants consisted of Roweepra® (levetiracetam USP) and are used to provide care for epilepsy patients temporarily unable to access care independently. The ROW Foundation is open to providing similar treatment grants to Epilepsy Foundations operating treatment clinics and serving under-resourced populations.

Treatment Grant (Completed)

In October 2017 ROW partnered with the Epilepsy Foundation of Greater Chicago and Dr. Rebecca Garcia Sosa of Lurie Children’s Hospital in Chicago to deliver a medication humanitarian aid shipment to Hospital Pediátrico Universitario (HOPU) in San Juan , Puerto Rico in the aftermath of Hurricane Maria. HOPU had been designated as a central hub for the receipt of medication humanitarian relief, and Dr. Janice Rodriguez Hernandez, Child Neurology Chief Resident, Fundación Hospital Pediátrico, was responsible for coordinating the distribution of the medication to where it was most needed until commercial pharmaceutical distribution could be restored.

Treatment Grant (Completed)

In 2018, the ROW Foundation made grants of Roweepra® (levetiacetam USP) to three organizations that provide medical relief in the U.S. and around the world. These partners have expanded our reach to dozens of under-resourced countries.

Treatment Grant (Completed)

Since 2018, the ROW Foundation has provided emergency humanitarian aid shipments of Roweepra® (levetiracetam USP) to Cuatro por Venezuela. This medication has been distributed by the Venezuelan League Against Epilepsy (LIVECE) in Caracas, and by affiliated physicians throughout the country. To date, over 16,000 bottles of Roweepra® have been shipped.

Future

ROW has a partnership opportunity to fund an epilepsy program for children outside the capital of Lusaka. This program will improve care and also provide resources to address stigma in the community.

Treatment Grant (Ongoing)

In 2019, a treatment grant was provided to University Teaching Hospital (UTH) Children’s Hospital. This is an ongoing commitment to provide Roweepra® (levetiracetam USP) to the pediatric hospital in Lusaka.

Training Grant (Completed)

In 2019, ROW made a training grant to the Global Organization for Health Education (GOHE).  GOHE is providing clinical training and evaluation for two neurodiagnostic technicians at Epilepsy Support Foundation Zimbabwe, located in Harare.

Recent Updates

September 18, 2019

Exciting New Partnership!

Accurate diagnosis of epilepsy is crucial in its management. Electroencephalogram (EEG) tests help to diagnose epilepsy and to establish the correct treatment. Interpreting the test requires specialists who are in short supply in under-resourced countries.
August 16, 2019

The Amanda Award

Earlier this year, ROW launched the Amanda Award to honor the memory of Amanda Brooke de los Santos, who passed away from seizures at a young age. Each year, ROW will award a grant to an organization with a track record of achieving meaningful results in addressing untreated epilepsy.
July 17, 2019

Notes From The Field – Ken Koskela

Last month our Director of Global Programs, Ken Koskela, visited the CURE Children’s Hospital of Uganda. CURE Uganda (https://cure.org/uganda/) is doing world class work in neurosurgery for very poor patients. Uganda has many cases...

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