Situations in which “the whole is greater than the sum of the parts” are always thrilling to see. Sometimes they reveal the power of “compassionate collaboration,” and the benefit provided to persons living with epilepsy in under-resourced areas can be powerful!
Over the last few years the ROW Foundation has had the privilege of meeting and working with talented organizations and people engaged in improving the quality of care available in unserved areas.
In past Leadership Updates I’ve shared with you the exciting work of International Neurology Services (INS) and their quest to bring EEG technology and remote reading by volunteer neurologists to hospitals and clinics without EEGs or neurologists. I’ve also had the privilege of being involved in an article written by author/journalist Mike Hamel about Keith Morgan, a business owner and Registered EEG Technician who is working – along with some of his colleagues – to provide onsite training, and continuing education via the internet, for EEG technicians working in under-resourced areas who want to build their skills and competencies.
More recently we’ve come into contact with Children’s Hope, a US-based charity that has established a Medical/Dental Clinic in Jacmel, Haiti – an area without access to EEGs or neurologists. And here’s where we see the power of compassionate collaboration . . . . Later this month (March 2017) International Neurology Services (INS), Keith Morgan and a colleague, Children’s Hope and the ROW Foundation will be collaborating on a project at the Children’s Hope Medical/Dental Clinic in Jacmel.
INS is sending a neurologist with a solar–powered, mobile EEG unit developed by INS that will allow EEG studies to be done in Haiti in areas without reliable electrical power. The results of these studies will be transmitted via the internet to INS volunteer neurologists in the United States who will read them, provide diagnoses, and recommend treatment plans to be carried out by primary care health care providers working at the clinic.
Keith Morgan and a colleague will assist in conducting the studies and training clinic personnel. The ultimate goal is to provide online continuing education and support for clinic personnel once they have their own EEG equipment. At that point, EEG studies will be conducted directly by personnel at the clinic, read and interpreted by volunteer neurologists working with INS in the United States, with Keith and his colleagues providing ongoing training via the internet to ensure the EEGs are of the highest quality. The provision of permanent EEG equipment for the Children’s Hope clinic in Haiti is being considered as a future project by ROW.
The ROW Foundation will also be providing an ongoing, sustainable supply of Roweepra™ (levetiracetam tablets USP) as an anti-epileptic drug (AED) to help in the treatment of those patients diagnosed with epilepsy at the clinic. Initially, Roweepra™ 500 mg will be provided, but ROW will also provide 750 mg and 1000 mg dosages as needed and requested.
The English language is full of superlatives, and they tend to be used more often than they should. But sometimes they’re the only way to convey the truth. This is an utterly FANTASTIC project!