In June, ROW celebrated the 5th anniversary of our first grant, made on June 17, 2015. Today, as we write this, it’s been 1,876 days since that first grant. New York’s Madison Square Garden seats 20,789 people. Thirty-nine million people would fill it up 1,876 times. It’s staggering to think that we would have to fill all the seats every day for more than five years to equal the number of people from lower-income regions who are living with untreated epilepsy!
The treatment gap is a huge problem that’s largely been ignored by governments, NGOs and donors, with devastating consequences. But it’s also a tremendous opportunity to dramatically change lives on a very large scale because there’s a high treatment success rate—about 70% of sufferers have their seizures controlled with medication—available at relatively low cost.
While there’s no one solution for everyone with epilepsy, in many cases it’s just a matter of getting the right medication. Through the generosity of our partner, OWP Pharmaceuticals, we have an ongoing supply of Roweepra® (levetiracetam USP) for granting in low-income regions around the world. For thousands of people, having access to this medication has been life-changing and even life-saving.
We’ve been sharing lately how COVID-19 is impacting people with epilepsy. It hit close to home this month with the passing of ROW Foundation partner and key leader in epilepsy advocacy, Anthony Mulenga Zimba. He passed away August 9th due to COVID-19. Anthony founded the Epilepsy Association of Zambia in 2001, a chapter of the International Bureau for Epilepsy (IBE). He worked as an epilepsy specialist in hospital settings and private practice and established epilepsy clinics in collaboration with the Zambia Ministry of Health. Beyond Zambia, Anthony held various positions with IBE, including serving on the International Executive Committee for the last eleven years. He will be greatly missed.
We appreciate your partnership in supporting people with epilepsy during these challenging times. If you would like to help, go to our Donate Page and simply check “Where needed most.” All donations through the end of the year will go to help those with epilepsy impacted by COVID-19.
If you would like to help ROW establish and extend our partnerships with epilepsy-related organizations you can get in touch with us by email at: email@example.com.