Reducing Risk in Trying Times
2020 Amanda Award
March 20, 2020
Addressing the Treatment Gap in the DRC
May 26, 2020TeleEEG Grant in Sudan
Elsewhere in Africa there’s good news from Sudan. ROW is partnering with TeleEEG to provide for an EEG clinic in Nyala, the capital of South Darfur in Sudan, a country of more than 40 million people. According to the PanAfrican Medical Journal:
Patients of epilepsy are subjected to various forms of social discrimination that affect their quality of life. They are isolated, neglected and deprived of their education and employments rights and not able to achieve normal social and family life… Social encumbrances due to epilepsy in Sudan are more prevalent among highly vulnerable groups like women, children and poor populations living in remote areas.
There is currently no EEG service outside the capital area of Khartoum. The clinic in Nyala intends on providing service to Darfur and to patients expected to arrive from neighboring South Sudan, Chad, and Central Africa. With the EEG machine provided by TeleEEG, trained epilepsy nurses will carry out EEG tests on patients at the Nyala Teaching Hospital and upload the results to the TeleEEG server. TeleEEG interpreters will read the EEG and produce a report.
Many patients, especially children, are desperate for EEG support to assist in the management of their conditions. TeleEEG’s vision is that “this great effort will become a nucleus for other neurological services in this part of the world and help thousands of patients around Nyala.”
If you would like to help ROW establish and extend our partnerships with epilepsy-related organizations you can get in touch with us by email at: lori.hairrell@rowpharma.org.
